Rachael Olley is our representative to this research study group. Eddie Hincks provided input prior to the start of the study.
Funded by Cancer Research UK, this study explores the relationship between parent and practitioner when a child is diagnosed with Acute Lymphoblastic Leukaemia (ALL). The research aimed to discover what parents thought about their relationship with their child’s doctors and nurses, to identify changes in parent and patient needs and parent-doctor relationships over time.
43 families with a child aged between 1 and 12 years diagnosed with ALL, were interviewed at 6 weeks, 6 months and 12 months after diagnosis. Of 34 participating doctors, nurses and play (child life) specialists, 28 were interviewed twice, and 6 once.
32 hours of parent-doctor consultations were also recorded for the study.
We hope this important study will benefit parents, paediatric oncologists and other medical staff. The research team is continuing to look at the results, and periodically publish updates about the findings on the Cancer Research UK website.