Many families come to CCPA needing a listening ear, others want information or advice about issues such as how to apply for benefits, finding medical aids or support for siblings and the wider family.
We have listed below a range of organisations that can help with those questions, and the many more you may have about practical or emotional support.
Provides support for children with cancer and their families in Northern Ireland
Provide family support services, equipment, treatment and therapies for disabled children across the UK. Also run a Destination Dreams holiday to Florida for children fighting life-threatening conditions.
Supports families of children diagnosed with Neuroblastoma and other rarer childhood cancers.
Cyclists Fighting Cancer
Provides bicycles for children who have had cancer, their siblings and children of adults diagnosed with cancer.
Provides Xmas Gifts to children with cancer – applications taken between 1stNov and 7thDec
Hats 4 Heads
Provide stylish hats for all ages of people who have lost their hair through illness.
Sends wish boxes to young cancer patients upto the age of 25.
Provides care grants and respite breaks for families of children with cancer under 18 years old.
Aims to provide teenagers who have long term or life threatening illnesses, with computer technology that enables them to maintain contact with friends and school, and continue their education.
Gives grants (typically £500-£1000) to help families of children with cancer deal with the financial impact of the cancer diagnosis (subject to meeting their application criteria).
Panel for Specialist Education Advice (IPSEA)
Provides free legal advice to families of children with special educational needs.
Provide free surgical gowns or pyjamas for babies and children in hospital (max 2)
Provides practical and emotional support to families who have a child with a life threatening or terminal illness.
Helps families caring for a child with an illness which is life threatening or has the potential to shorten their lifespan. Its purpose is to provide funding in situations where none is available elsewhere.
Provides free pre-paid sim cards for people living with cancer
Personalised canvas shoes for children undergoing cancer treatment
The Family Fund
Provides grants to families with severely disabled or seriously ill children.
Provides treats and wishes for children with cancer and their families in the Milton Keynes area.
Provides free real hair wigs to children up to the age of 24 who have suffered hair loss through cancer treatment or other illnesses.
The Newlife Foundation
Helps disabled and terminally ill children in the UK. Provides specialist equipment grants and loans of equipment, play pods and toys.
Provides assistance to children age 2-18 with cancer excluding a brain tumour or Leukaemia diagnosis.
Charity in Newmaiden, Surrey that provides day trips, treats and regular events for families of children with cancer.
Tom’s Gift is a special present sent to children aged 0 to 16who require treatment for cancer. This special present includes a mystery item and a £30 Debenhams gift voucher for them to spend in-store or online on anything they will find fun and enjoyable.
Customised wheelchairs, tricycles and other specialised mobility equipment for children.
Emotional Support and Awareness
Action for Sick Children
The UK’s leading children’s healthcare charity, specially formed to ensure that sick children always receive the highest standard of care possible.
Advisory Centre for Education
Provides advice and information to parents and carers across the UK on a wide range of school related issues.
Supports Northamptonshire families whose child has a long term illness, including all childhood cancers, by arranging and funding monthly activity meetings. Also provide Alfe’s Comfort Cushions for children with cancer.
Association of Charitable Organisations
ACO is the national UK umbrella body for Trusts and Foundations that give grants and welfare support to individuals in need.
Supplies Signs and Symptoms of childhood cancer awareness cards, a signs and symptoms App and co-ordinates the Beads of Courage scheme.
Offers a wide range of information, advice and support for carers of all ages.
Aims to improve carers’ lives by providing information, advice, support and advocacy.
Contact A Family
CAF Family Workers provide 1:1 help for families on a wide range of issues they encounter when caring for a disabled child.
Disabled Living Foundation
Provides impartial advice, information and training on daily living aids.
Aims to place End of Treatment Bells into hospitals for children and adults with cancer to ring after their gruelling treatment.
Support group for families of children with cancer in the Southend on Sea area
A national network of trained parent volunteers who support struggling parents, no matter what the reason.
LATCH is a charity that supports the children who are receiving treatment for cancer at the Children’s Hospital for Wales and their families.
Macmillan Cancer Support
At Macmillan, we know how a cancer diagnosis can affect everything. So we’ll help you find your best way through. From advice about money and work, to someone who’ll listen if you just want to talk, we’re here when you need us most.
Medicines for children
Web-site providing easily understandable information about medicines which may be prescribed for children.
Molly Olly’s Wishes supports children with terminal or life threatening illnesses and their families to help with their emotional wellbeing. We grant individual wishes and donate therapeutic toys and books to both children directly and to hospitals throughout the UK.
Local support group for families of children with cancer in SW London and Surrey.
Children’s mental health charity providing school-based support.
Charity that encourages the public to ‘Post a Smile on a Sick Child’s Face’ by the sending of cards, letters, emails and little gifts to seriously ill children and their siblings in the UK.
Provides confidential non-judgemental emotional support, 24/7 for anyone experiencing distress or despair.
Local support group for children with cancer and their families in Lewes, East Sussex.
Encourages stem cell/bone marrow donors and provides education packs for schools on becoming donors.
Brings 13-24 year olds who have been diagnosed with cancer together through workshops, activity days and residential stays.
The CATS Campaign (Cancer Awareness in Teenagers and Young People Campaign)
Provides awareness of symptoms of cancer in young people
Supporting families of children with cancer in the Nottingham area.
Provides the addresses and telephone numbers of local services providing counselling, advice, information, befriending, for children and adolescents.