At CCPA we know how confusing it can be to be thrown into a world of hospitals, fear, stress your child’s cancer diagnosis.
Often the internet is the first place families search for information: that’s why we have put together this list of organisations to give you an informed platform to find out more information about your child’s specific cancer.
If you would like to talk through your concerns or need practical advice or support please contact our Operations Manager, Rachael on 01785 283435
Provides information for teenagers who have or have had cancer, on a wide range of issues including staying healthy, fertility, relationships, travel and vaccinations, financial information, education and careers.
Register for Stem Cell or Bone Marrow Transplants and information and support for patients and their families
Funds world-class research, provide practical and emotional support to patients and their loved ones and raise awareness of blood cancer.
Provides information and support to families and individuals affected by retinoblastoma; funds research and a number of support staff serving both the London and Birmingham treatment centres.
Based in Nottingham, carries out research into Childhood Brain Tumours
Children’s Cancer and Leukaemia Group
National professional body responsible for organisation of childhood cancer treatment. Coordinates national and international clinical trials, and produces award-winning information for patients and families’ books for children.
Children with Cancer UK
Dedicated to the fight against all childhood cancers.
Campaigns and raises funds for research into childhood cancers.
Clinical Trials Information
A database of cancer trials. Through this you can search trials which are open and recruiting patients, trials that have closed or trials with results.
Blood Stem Cell Donor Register
Raises funds for research into childhood cancers.
This charity aims to raise funds for vital research and to promote awareness of this devastating cancer which mostly affects teenagers and young adults.
A Plymouth based charity which helps families all over the UK who have a child suffering from neuroblastoma. Whether emotional support, making a memory or helping families keep in touch.
Authentic, relatable health education for children and families.
Offers financial assistance to families who have a child diagnosed with Neuroblastoma.
Race Against Blood Cancer is a non-profit charity whose goal it is to increase the volume and diversity of people who register as potentially life-saving donors.
Aims to help and support campaigns to raise funds for medical treatment/equipment not available on the NHS.
Raises awareness of childhood cancer and the signs and symptoms with which it may present. Produces educational resources for parents and clinicians, funds research into rare solid tumours of childhood and an online support group for parents and carers of children diagnosed with a rhabdoid tumour of any location.
The Brain Tumour Charity
Funds scientific and clinical research into child and adult brain tumours, and offers support and information to patients and their carers.
The HeadSmart Campaign
Be brain tumour aware is a UK-wide campaign to reduce diagnosis times of childhood brain tumours, reducing long term disabilities and ultimately saving lives.
Raising awareness and funds for brain tumour research
A membership organisation which helps all professionals involved in the care of young people with cancer to work together to improve knowledge and services.
Raising funds to support research into T-Cell Acute Lymphoblastic Leukaemia
The Brain and Spine Foundation
An award winning service run by neuroscience nurses and other health professionals. Covers all brain and spine conditions, and offers information and support on any medical or related social and emotional issues.
Supports anyone with lymphatic cancer and their families, carers and friends. Information booklets; newsletter; buddy scheme; support groups; regional and national conferences; website chat room.
Raises funds for research and offers information and support for families.
For all children with eye cancer, their families and survivors.