Who We Are
Our CCPA team has a very personal perspective of childhood and adolescent cancer. Most of our leadership team have had a child with cancer or have undergone treatment themselves in childhood. So we know just how devastating cancer in childhood can be, as well as the life-long implications of the diagnosis, treatments and outcomes.
Ros Francis is a mother of two whose son Guy was diagnosed with osteosarcoma just before his 18th birthday. Whilst in remission Guy raised thousands of pounds for research and when he lost his own battle against this rare and aggressive bone cancer in 2002, his family and friends promised him they would continue.
Since then Ros has gained much experience in founding and running charities both as a trustee of the Guy Francis Bone Cancer Research Fund run locally in Guy’s name from York and also as Clerk to the Trustees of the national Bone Cancer Research Trust.
Ros and her husband Mike have been members of CCPA for many years and are now pleased to be able to become more involved. As parents and particularly bereaved parents, they are especially keen to promote parents’ voices within medical and research communities.
During her teaching career, in disadvantaged areas, working with children with special needs and running courses for parents, Ros gained experience in providing support to families. She also brings this to her role as a trustee of CCPA.
Trustee & Treasurer
Eddie Hincks has been married to Brenda for over 40 years and has 2 children Col & Jenny.
He has been a trustee of CCPA/NACCPO since its inception in 1999. His group CHICS joined the group as one of its founder members.
He has been a member of CHICS, Children’s Cancer Support Group since his son was diagnosed in 1991. For the last 10 years he has been their family support worker after previously holding the posts of treasurer, vice chair & chair. He also chaired the CHICS Executive Group for a number of years.
CHICS supports families that are treated at Alder Hey hospital, and covers the areas of Merseyside, Wirral, North Wales, Isle of Man and parts of Cheshire & Lancashire.
His main role is to introduce CHICS to all newly diagnosed families and to support them in whatever way is needed. CHICS celebrated its 30th anniversary in 2016.
Abby was born with bilateral retinoblastoma (cancer in both eyes). She has an artificial eye and limited vision in her remaining eye that is now failing due to late effects of radiotherapy in infancy.
Abby studied geography at university, with emphasis on African development. In 2004, she co-founded Daisy’s Eye Cancer Fund (now World Eye Cancer Hope), which focuses on building sustainable high quality retinoblastoma care for all children and families and survivors, especially in developing countries. Abby co-ordinates the organisation’s day-to-day activities while also assisting individual families worldwide.
Abby has been involved with CCPA since 2008, and joined the board in 2009. She organised our 2010 national conference in Oxford. Continuing her Global focus, she represents CCPA at meetings of the International Society of Paediatric Oncology, and Childhood Cancer International, and serves on the Projects Committee of World Child Cancer.
Executive Member & Finance
Mike Francis’s son Guy was diagnosed with osteosarcoma, aged 17. Guy raised thousands of pounds during his time in remission, but died aged 23. Before his death he founded, in York, the Guy Francis Bone Cancer Research Fund which, in 2004, joined with 4 similar groups to create the national charity, Bone Cancer Research Trust (BCRT). Mike became BCRT’s founding Chairman of Trustees, bringing to the organisation his skills as a Chartered Manager, Chartered Marketer and Professional Lecturer.
He became a NICE Registered Expert Witness and Patient Carer and led the BCRT Lay Team to successful approval of the break-through osteosarcoma treatment drug MEPACT.
Since 2006, Mike has served on the CCPA Executive Board. He is also a member of the Editorial Board for CCLG’s (Children’s Cancer and Leukaemia Group) Contact magazine and is a Patient and Public Involvement UK Representative to the Euro Ewing Consortium, an EU €5.6 million long-term research project.
Sam Schoolar started her journey with childhood cancer in 1987, at the age of 10, when she was diagnosed with Acute Myeloid Leukaemia. Sam was successfully treated with two and a half years of chemotherapy and radiotherapy at Birmingham Children’s Hospital and defying the odds has gone on to have three beautiful children, Chloe, Jacob and Joseph! Sam has been able to partake in an active and happy life, despite some long-term effects and has a passion to give hope and encouragement to other families facing similar journeys.
Sam has volunteered with and been a board member of several childhood cancer charities and has followed the work of the CCPA since it’s early days, she is driven to help and support families affected by childhood cancer and to unite charities across the UK who are doing like work, with the belief that together we are stronger and sharing good practice is of benefit to all.
Sam is the founder and chair of Shine A Light Support Service, a registered charity based in Coventry, who support families across the Coventry and Warwickshire area who have a child with cancer, by provision of a range of services and activities. Sam is also a member of the contact editorial board.
Rachael Olley has served as Operations Manager since 2005. Under the supervision of the Board of Trustees, she manages day-to-day running of the charity, fundraising and marketing activities and charitable operations. She maintains direct contact with member groups, organises support worker meetings, specialist interest groups and national conferences.
Locally, Rachael provides support and advice to families who have a child or teenager with cancer. She also responds to enquiries from families and their advocates across the country, signposting them to appropriate local support, or providing help directly if no local service is available.
Rachael also provides input to various charities and study groups on aspects of paediatric cancer services from a parental / family perspective.
Rachael is Mum to two boys: Connor and Max. In 2002, Connor was five years old when diagnosed with Leukaemia, and Max was just a babe in arms. Connor endured three years of chemotherapy to achieve the good health he enjoys today. So Rachael fully understands the difficulties faced by families whose children are receiving cancer treatment.
Amanda began her involvement in the charity sector over 28 years ago when she volunteered in a local hospital. Although her working background started in conference and video production working on product launches and promotional videos she retrained as a garden designer in 1996.
Her career took a different direction about 18 years ago when she began working in the charity sector in fundraising and PR for both national and locally based charities including St John Ambulance, Penny Brohn Cancer Care and The Royal British Legion. In 2016 she set set up Danells and Bewley Consultants supporting charities with income generation and marketing communications.
Amanda has 4 children, and 2 step-children and lives in Yorkshire with her husband and youngest daughter.